olivia'S storyAt 4-6 months old, Olivia was not hitting her milestones, so the family took her to Boston Children's Hospital. She was diagnosed with GNA01, a disorder of the 16th set of chromosomes, after participating in a study. Common characteristics are seizures, abnormal movements, and developmental delays. She takes medication to manage her symptoms. Olivia cannot sit or crawl, and she just started rolling over, but it isn't consistent. Olivia goes to OT, PT, and speech therapy five times a week. She has an AAC device to help with communication. Olivia also has a cerebral visual impairment diagnosis, meaning she is legally blind and doesn’t process what she sees.
Olivia is a happy little girl who loves Disney and princesses. She has an infectious smile and the best laugh ever. She is looking forward to starting school in the fall. The family is so excited to make lasting memories by going to Disney and staying at Give Kids the World!